My News Feed

jasyoung25

Thu, Feb 2 at 4:23pm EST by @jasyoung25 · View  

Hello, My name is Jasmin, my mom was diagnosed with cancer last [...]

Hello,
My name is Jasmin, my mom was diagnosed with cancer last year and I helped care for her. After going through chemo and radiation and having surgery to remove the mass she got a little stronger, although she is not cancer free she is no longer receiving chemo and is being closely monitored. Throughout her up and downs we decided to start putting together care packages for patient doing through cancer.
That brings me to my question, is there any one I can call or sign up or receive permission to donate care packages to children battling cancer?
I am currently a nursing student and want to gather a few student to help and just give the kids a little gift for being such strong fighters.

If anyone can give me a number or information on how I can make this happen that would be greatly appreciated.

Thank you
Jasmin Y

Login here to comment.
michaellcsw

Wed, Jan 25 at 3:52pm EST by @michaellcsw in Kidney Disorders · View  

Hewell Kids' Kidney Center Support Group - Learn to cook Renal friendly Chinese Food!!

Thu, Jan 26 2017 at 5:30 pm ET

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.

Login here to comment.
michaellcsw

Tue, Jan 24 at 11:43am EST by @michaellcsw · View  

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.

This month's group will feature cooking education for renal patients with renal specific diets. The feature cuisine is Chinese. YUM! 🙂

Login here to comment.
APMCmoderator

Oct 10, 2016 by @APMCmoderator in Epilepsy · View  

How can parents best prepare for the anxiety of entrusting your child’s medical issues to teachers and school administrators? Read our new blog post for answers, here: http://www.arnoldpalmerhospital.com/blog/sending-a-child-with-epilepsy-to-school-what-every-parent-should-know

7703f1029a-EpilepsyInsta.jpg
Login here to comment.
oanaburhans

Sep 25, 2016 by @oanaburhans in Pediatric Surgery · View  

Hi everyone. I'm new to the group. My 7 year old son will have open heart surgery to correct a VSD in December. I am an emotional wreck. Is anyone else in this situation? Thank you in advance.

chdlife

CHDLife responded Sep 29, 2016 · View

Hi, I am not in your current situation, but my son has had three open heart surgeries at APH. You have an amazing team, and are in amazing hands. Hold strong all will be ok.

oanaburhans

Oana Burhans responded Sep 29, 2016 · View

Would you be willing to answer some questions? I would really appreciate it.

Login here to comment.
oanaburhans

Sep 25, 2016 by @oanaburhans · View  

Hello, fellow parents. Anyone whose child is going to have open heart surgery in the near future?

Login here to comment.
05071986

Sep 6, 2016 by @05071986 in Genetic Disorders · View  

Dear Group member .. Its nice to join your respected group
Actually i have a daughter 3 years old now she is suffering from the first day of birth from Icthyosis which is a gene disorder cause dry skin and scales like fish scaled on all the skin surface of the whole body
My question is anyone face a case like this ?? and if yes what are the solutions ?? and i heard that there is a genetic treatment for such cases .. is that true or not ?
Thanks in advance

Login here to comment.
michaellcsw

Aug 29, 2016 by @michaellcsw in Kidney Disorders · View  

The Benefits of Finding a Good Support Group
As a Licensed Clinical Social Worker at The Hewell Kids’ Kidney Center at Arnold Palmer Hospital, I have many teenage patients express to me that they feel lonely, isolated, and different. They feel that that no one understands what they are going through, and sometimes, they don’t even know what they are going through, or what to expect in the future. They express feelings of grief from losing some of the freedom they once enjoyed and the carefree attitude they once had. Many of these young patients show symptoms of depression and anxiety, too.

The thoughts and feelings expressed by these kids are expected when suffering from a chronic illness. Knowing this, the issue then is how to help these kids cope and adjust, how to connect them to resources, and how to help them realize they are not alone. Clinicians, like myself, could have all of the training in the world, but we could never truly feel what these kids are feeling, or understand what they are going through. For these kids and families who find themselves in this challenging situation, a support group is often a great resource.

The most important function of a good support group is to provide the opportunity for kids to connect and share with other kids who are dealing with the same circumstances. Your peers can help you develop coping skills to deal with your individual situation. Oftentimes, it can help to talk or just listen to others who are also trying to find ways to cope, since they are the ones who can really understand what you are living with. However, it is important to note that support groups are not designed to replace medical or professional counseling. But, sometimes just telling your story will encourage support from the other members in the group.

Support groups can be a great way to get access to resources as well. Many support groups are facilitated by licensed clinical social workers and licensed mental health counselors who have access to local and national resources, and oftentimes, patients and caretakers are eager to share the resources they have located that could benefit others in the group. Speakers are sometimes invited to address the group on local services that are available and helpful, too.

Another important function of a support group is the exchange of phone numbers among members who are interested in doing so. While it is not a requirement of being in a support group, you may find it helpful to call someone who understands, if needed. I’ve seen, firsthand, how this aspect of the support group experience can be very beneficial.

For patients, support groups assist in coping and adjusting to: loss, a specific disease or illness, addiction or major life change, anxiety, depression, social isolation, self-esteem, and self-management, which can lead to better health and survival. Patients often find camaraderie and support by meeting with peers with similar experiences. It helps them feel like they are not alone. Support groups can also increase the quality and quantity of support between doctor visits, leading to better self-management.

For parents and caretakers, interaction with others assists in coping and adjustment to your child’s illness. Parents and caretakers find similar camaraderie and support through mutual experiences. They assist others in locating support and referral services. Interaction with other parent and caretakers can even reinforce one’s own self-health skills.

In a support group I facilitated, eight teen patients came together for the first time, not knowing each other very well at all. Before the end of the first session, they had transformed from eight individuals to a very supportive group. They openly shared the problems they face each day, and how they cope and adjust to these issues. They answered questions from peers wanting to know what to expect from a medication or procedure. They shared stories about their school, relationships and their scars. They laughed, joked, learned something about themselves, and acted like typical teens together during this time. They eagerly swapped phone numbers and continue to communicate, even on days the group does not formally meet.

The power of people can never be underestimated, and the support group process demonstrates the healing an individual can find in the experience of sharing with others in a similar situation.

If you are interested in participating or finding out more about support groups in Central Florida, you can contact the Patient & Family Counseling Department at Arnold Palmer Medical Center at 321.841.8053.

To join the upcoming support group for the Hewell Kids' Kidney Center at Arnold Palmer Hospital on September 29th, visit the information page to the right. -->>

356d0332a0-20160128_181641-1.jpg
Login here to comment.
michaellcsw

Aug 29, 2016 by @michaellcsw · View  

Important information from American Kidney Fund regarding Medicare.

Login here to comment.
michaellcsw

Jul 21, 2016 by @michaellcsw in Kidney Disorders · View  

Join the Online kidney support group!

Hello! Welcome to our online interactive KIDNEY group. This is a place where all of you can interact with each other, share experiences, ask questions, find support, tell a joke or two, or talk about whatever is on yor mind as it relates to Kidney Disorders. I look forward to sharing this experience with all of you. -- Michael

michaellcsw

Michael Schwing, LCSW responded Aug 10, 2016 · View

I spoke to the clinic and they are setting an appointment for your child. They should be in contact with you soon. Mike

marieli11

Marieli orellana responded Aug 10, 2016 · View

Thank you i have the appointment for monday

Login here to comment.

promo badge for APH community

Upcoming Events

Free clinic for infants and children with Down Syndrome

Saturday March 19th, 2016

8:00 a.m. to 12:00 p.m. at 

The Developmental Center for Infants and Children

601 West Michigan Street Orlando, Fl 32805

This is a special opportunity to talk with a variety of professionals in the field, learn about resources, obtain information and network with other families. Space is limited, so call 407-317-7430 ext. 2168 to reserve your spot. 

 


Hewell Kids' Kidney Center Support Group

Thu, Feb 23 2017 at 5:30 pm ET

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.


Mothers Matter: An emotional support group for pregnant and postpartum women

Fri, Feb 24 2017 at 10:30 am ET

This is an open support group for pregnant and postpartum women. Whether it is stress, adjustment to parenting, normal Baby Blues, or pregnancy or postpartum depression/anxiety Mothers Matter is here to help. The group will... Read more