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lukep

Thu, Mar 2 at 4:01pm EDT by @lukep in Gastrointestinal Disorders · View  

Hi. I am looking for information regarding IBS. My 8 year old [...]

Hi. I am looking for information regarding IBS. My 8 year old was recently diagnosed. Thanks.

missmae

missmae responded Fri, Mar 10 at 4:09pm EDT · View

Hey @lukep - Mostly I was watching what I ate. I started avoiding spicy foods and making sure that I didn't overeat. I found those to be the main triggers for me. I also experimented with cutting out certain groups like starches or dairy at different times just to see how my body would react. I didn't notice much difference most of the time. Hopefully you and your child can start working together to figure [...]

lukep

lukep responded Thu, Mar 16 at 3:07pm EDT · View

@missmae - I appreciate your willingness to help. I have a couple of other questions but I am not sure I feel comfortable asking them on this open forum. Would you mind if I sent you a message instead?

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michaellcsw

Wed, Mar 8 at 4:18pm EDT by @michaellcsw in Kidney Disorders · View  

Hewell Kids' Kidney Center Support Group
Thu, March 30, 2017 at 5:30 pm ET
1st Floor APH Classrooms behind Scripts Pharmacy

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.

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threelittleones

Mon, Feb 27 at 3:41pm EDT by @threelittleones in Epilepsy · View  

I have a child with Epilepsy and I have been doing a lot of research on my own about the ketogenic diet for treatment. Is there anyone who has any experience with this? I would love to know if anyone has had any success reducing seizures with the diet, but I would be interested in any feedback (good or bad) at all.

Thanks!

angiev

angiev responded Wed, Mar 1 at 3:51pm EDT · View

Hi @threelittleones I also have a child with epilepsy and spoke to our doctor about this diet. Fortunately my son's seizures have been well controlled with medications so the doctor didn't think that we would see much help from trying this. If you haven't had a lot of luck with finding a medication that will work for you, it might be worth asking your doctor about it. If you are newly diagnosed though, it might [...]

hannahbanana

hannahbanana responded Fri, Mar 3 at 4:16pm EDT · View

hi @threelittleones. My nephew has epilepsy and my sister in law has been using the keto diet. I believe that it has helped him out overall but I know that she struggles with trying keep him on track with his foods as he doesn't necessarily want to eat only the things that are on the plan. I know Halloween was tough for him as all his friends got to eat candy and he didn't. Best [...]

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ArnoldPalmerMod

Thank you for joining our Brain & Spinal Cord Tumor Group @nliranzo97 @sharebear @woodgail!
We would love to get to know you better by telling us a little bit about why you are interested in this particular group and how you hope to connect with other patients and families within the group in the comment box below. We look forward to connecting with you further!

delsner

Delsner responded Mon, Feb 27 at 10:02am EDT · View

We are new to Arnold Palmer. Our 10 y/o son just had a large astrocytoma removed Friday....feeling overwhelmed but blessed the tumor is gone.

albanymom

albanymom responded Tue, Feb 28 at 3:32pm EDT · View

Hi @delsner - Congratulations on the successful surgery! Best wishes and I hope your son has a speedy recovery!

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csummerville

Hello everyone, My son completed his chemotherapy treatment six months ago and [...]

Hello everyone,

My son completed his chemotherapy treatment six months ago and was told that the tumors have returned. He is starting chemotherapy treatments again this week. He is so heartbroken that he has to endure chemo again. I am so devastated and just lost of words and emotions right now. I don't know if I can handle this again.

My home is still in shock

delsner

Delsner responded Mon, Feb 27 at 10:00am EDT · View

I'm so sorry you and your son are hoing through this. Maybe get into a support group that can help you process all your feeling. Prayers for your son and family.

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jasyoung25

Thu, Feb 2 at 4:23pm EDT by @jasyoung25 · View  

Hello, My name is Jasmin, my mom was diagnosed with cancer last [...]

Hello,
My name is Jasmin, my mom was diagnosed with cancer last year and I helped care for her. After going through chemo and radiation and having surgery to remove the mass she got a little stronger, although she is not cancer free she is no longer receiving chemo and is being closely monitored. Throughout her up and downs we decided to start putting together care packages for patient doing through cancer.
That brings me to my question, is there any one I can call or sign up or receive permission to donate care packages to children battling cancer?
I am currently a nursing student and want to gather a few student to help and just give the kids a little gift for being such strong fighters.

If anyone can give me a number or information on how I can make this happen that would be greatly appreciated.

Thank you
Jasmin Y

albanymom

albanymom responded Thu, Feb 23 at 10:40pm EDT · View

Hi @jasyoung25! I think it is so great that you helped take care of your mom and that you are so close. It is also so generous of you to want to give back to kids battling cancer. I searched around a bit and found the number for the Arnold Palmer donations office, maybe they can help or at least point you in the right direction - (407) 841-5114. Can I ask what would be [...]

jandy

jandy responded Fri, Feb 24 at 3:21pm EDT · View

@albanymom - I was briefly a part of an organization that did something like that. In the kits we included things like small blankets, pillowcases, coloring books, fuzzy socks, etc. Some of the handier members also used special fabric and custom made hospital gowns as well. It was very rewarding.

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michaellcsw

Wed, Jan 25 at 3:52pm EDT by @michaellcsw in Kidney Disorders · View  

Hewell Kids' Kidney Center Support Group - Learn to cook Renal friendly Chinese Food!!

Thu, Jan 26 2017 at 5:30 pm ET

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.

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michaellcsw

Tue, Jan 24 at 11:43am EDT by @michaellcsw · View  

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.

This month's group will feature cooking education for renal patients with renal specific diets. The feature cuisine is Chinese. YUM! 🙂

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APMCmoderator

Oct 10, 2016 by @APMCmoderator in Epilepsy · View  

How can parents best prepare for the anxiety of entrusting your child’s medical issues to teachers and school administrators? Read our new blog post for answers, here: http://www.arnoldpalmerhospital.com/blog/sending-a-child-with-epilepsy-to-school-what-every-parent-should-know

7703f1029a-EpilepsyInsta.jpg
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oanaburhans

Sep 25, 2016 by @oanaburhans in Pediatric Surgery · View  

Hi everyone. I'm new to the group. My 7 year old son will have open heart surgery to correct a VSD in December. I am an emotional wreck. Is anyone else in this situation? Thank you in advance.

chdlife

CHDLife responded Sep 29, 2016 · View

Hi, I am not in your current situation, but my son has had three open heart surgeries at APH. You have an amazing team, and are in amazing hands. Hold strong all will be ok.

oanaburhans

Oana Burhans responded Sep 29, 2016 · View

Would you be willing to answer some questions? I would really appreciate it.

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Upcoming Events

Free clinic for infants and children with Down Syndrome

Saturday March 19th, 2016

8:00 a.m. to 12:00 p.m. at 

The Developmental Center for Infants and Children

601 West Michigan Street Orlando, Fl 32805

This is a special opportunity to talk with a variety of professionals in the field, learn about resources, obtain information and network with other families. Space is limited, so call 407-317-7430 ext. 2168 to reserve your spot. 

 


Hewell Kids' Kidney Center Support Group

Thu, Mar 30 2017 at 5:30 pm ET

This group is for patients and their families who have been diagnosed with a kidney disorder/disease.


Mothers Matter: An emotional support group for pregnant and postpartum women

Fri, Mar 31 2017 at 10:30 am ET

This is an open support group for pregnant and postpartum women. Whether it is stress, adjustment to parenting, normal Baby Blues, or pregnancy or postpartum depression/anxiety Mothers Matter is here to help. The group will... Read more