Does anyone know of any in the orlando area?
@colleen_wright @ggoldstein1 @jwtanner1 can you all help answer this question? Have you found any good support groups for pediatric cancer in the Orlando area?
I’m not aware of any, Carly. Should we look into creating one at APH?
I am absolutely shocked that there isn’t a support group. There are so many families that are going through these same things. I think it is definitely worth discussing to determine whether there is an interest in forming a support group. Also, another possibility is that there are a lot of capabilities of this site to create a sort of online support group.
What do you guys think about this?
Liked by Colleen
I am absolutely shocked that we aren’t aware of any support groups in our area. There are so many families that are going through these same things and could benefit from that.
I think it’s worth a discussion to determine whether a support group could be beneficial. Also, another possibility is using this community site as a way to form an online support group.
What do you guys think?
I think having monthly meetings on the floors would be helpful too, you can invite past families and families currently going thru treatment to talk. From there it would be nice to see if a bigger need is necessary
I am not aware of any either. When you attend camp boggy creek or even a lighthouse camp they do offer support in a group setting. I think something is needed locally as well. Would have really enjoyed for my daughter to talk to peers as she was going through treatment too. I do think it is most helpful though to connect with parents of same diagnosis. So if the group can be more specific to the type of cancer even better.
I agree, Colleen. I think it’s worth it to explore more. I think we should plan a gathering at the hospital and see how much interest there is. Carly and Courtney, can we talk this week?
Agree with Coleen
I am sure a lot of people are willing to help, we just need the system. Support groups also can help identify specific groups and needs, like teenagers and type of tumor.
For just an example our daughter got sick with osteosarcoma at the end of her junior year, and we had a lot of questions about college applications and the completing senior year at home or school.
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@ggoldstein1 @colleen_wright I will email you both today to get a time set up. Thanks for taking the initiative on this!
Thanks for the feedback Jennifer! This is really helpful in knowing how best to reach our families.
Thanks for the feedback Cesar! We are working to find a solution that is best for the families we serve at Arnold Palmer Hospital. Take care!
There is clearly a need of support groups
Specially for the AYA (adolescents and young adults)
There has been a renew interest in the oncology community to outreach this particular group
I have seen several teens and even young adults at APH
However it is more a Pediatrc geared environment
You should start inviting families to monthly meetings
Hurdles are time and distance
We are in the East Coast
However Orlando has so many things to do so maybe a Friday late afternoon may work
Adolescents have a complete different set of needs than children or older adults
They have high school
And parents are not the one they really want to see, rather feel better with peers
APH will get ahead of the game by having an AYA program
Cesar, We are currently working to form a support group for Pediatric Oncology. Stay tuned!
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I ll certainly more than happy to help in any capacity possible
Also for the adolescents could give them options to help others (even younger children) that also helps them as psychotherapy
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